I started this blog to share about life with a rare disease (mast cell disease) mostly to keep family and friends who have been praying for me up to date on what's going on but also to connect with others living with chronic illnesses. Most everyone reading this probably at least knows who I am, but some of you may not, so here's some interesting (or not so interesting) facts about me:
I love God and my family, in that order, more than anything. I do not considered myself "religious" because I do not base my faith or salvation on anything I DO. It is all based on God's grace and His love. I am married to my best friend, am super close to my mom, look up to my dad, and seriously think that my younger brother may take over the world one day.
I am a huge animal lover and have owned dogs, a horse, bunnies, fish, and a guinea pig at some point in my life. My husband and I regularly joke about our future farm and the animals we will have. Right now our list consists of alpacas, hedgehogs, pygmy goats, flopsy-eared bunnies, oreo cows, platypii (plural of platypus??), otters, Scottish Highland cattle, and I'm sure there's more I'm forgetting!
I have always enjoyed sports and being active. I have played soccer and ridden horses since I was young. I also played a few seasons of softball and basketball as a kid. In college I was on the soccer and swim teams and brought my horse. After graduating I started distance running and triathlons. I've done 2 marathons, but the half marathon is my distance of choice. I've only done sprint triathlons as the bike is my weakest and the longer the race, the more important that leg is. After a brief blip in being able to walk (let alone run) due to my mast cell disease, I'm slowly working back up to running again. I also enjoy just being outside hiking, picnicking, kayaking, rock climbing, you name it!
I always loved school as a kid (yes, I was that girl), and for lack of a true career plan, have stayed in school as a temporary "professional student" aka now working on my PhD. I have a BS/BA in chemistry and Spanish, MS in Chemistry, and am slowly inching toward a PhD in Exercise Physiology. I enjoy learning (not so much the studying) and doing research to understand how things work.
colors are green and orange (and blue)
animal to have as a pet is a dog
animal to dream of owning is an alpaca
season is fall
foods are fruit, sweet potatoes, and peanut butter
weather is sunny with a slight breeze and the right temperature to wear jeans and a sweatshirt
holidays are Thanksgiving and Passover
Bible verse is Isaiah 40:31 "Those who wait upon the Lord shall renew their strength; He will raise them on wings like eagles. They will run and not grow weary; they will walk and not faint."
I hope this gives you a glimpse of who I am. I may be living with mast cell disease and carnitine deficiency plus all the fun they bring along with, but I am so much more than just a professional patient. I am still me despite the challenges that living with rare diseases bring. What I am able to do has changed over the course of my chronic illness journey, but who I am has not!